Thank you so much to Emily's mom, Carrie, for sharing Emily's story... And I will be sure to pass your message on to Mackenzie's mom.
I Just came upon your blog today and thought I'd write you a quick note. My daughter, Emily, was diagnosed with Ollier's Disease when she was 3, she is now almost 15. I know what Mackenzie's family is going through right now and how scary it is to have a disease that very little is know about. Emily has been through 10 surgeries, 2 of which were to lengthen her left femur. The lengthening surgeries are very difficult. It has now been almost 3 years since the last surgery so we are in a good place. Despite it all, Emily is one of the happiest, most well adjusted teenager you'd ever meet. We live in San Jose, I saw that Mackenzie is in Sacramento.
As always,
Thank you for your support.
Team Mackenzie =)
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