Hometown Hero's.... Ay Jalisco supports Team Mackenzie...

 

 

 

The wonderful Mexican food place in Riverbend Market. If you are a West Sac native, you know this place. I stopped in and asked if I could put Mackenzie's ribbon on the window and they agreed. If you've never been there, you should go. Their food is amazing!!!

Sam's Story

Thank you Erin, for sharing Sam's story with us!

** Sam was diagnosed with Ollier's Disease at the age of 10 months. He is now 2 years old.

Sam, my son, has had 2 surgeries since his diagnosis and we are prepared for several more. The disease has severely impacted his right leg and, thus, his mobility. It has been a wild ride attempting to figure out his care due to the rarity of the disease, but he is currently being treated at the Mayo Clinic in Rochester, MN. 

As always,

Thank you for your support!!

Team Mackenzie

Shannon's Daughter...

** Thank you Shannon, for sharing your daughters story with us. I didn't find her name anywhere in the email, hence the title.

My name is Shannon, I have a 3 1/2 year old daughter who was diagnosed at 18 months with Olliers Disease. I initially took her to her pediatrician for a bump on her left ring finger. They took an xray, then referred to ortho to take more xrays. After going back and forth and dr to dr, we had 2 orthopedic doctors finally agree on a diagnosis. We are approaching our annual set of xrays on Wednesday, which might I add puts me into panic mode as soon as the appointment is made.

My daughters tumors are in her left hand, fingers and wrist, both heels in both feet and the femurs...he sees something there but as of last year it was not close to the growth plate. We will see Wednesday if that has changed. The only obvious tumor is on my daughters left ring finger and seems to be growing. I stil,l after the years, wish and pray that we will go in for our yearly exam and they will say they were wrong in diagnosing her.

As always,

Thank you for your support.

Team Mackenzie