Spaghetti Feed Pictures!!

These girls gave up cheering at their first game of the year to be with us at Mackenzie's Spaghetti Feed. Way to go ladies!!!!

 

                                           This is Mackenzie with her parents, checking out the bike that was up for auction

 This was seating we had out back. Kids were running the place. :)

 

 A packed house...

 

 Here are our beloved dj's from 101.9 The Wolf and Mr. Cieri (Mackenzie's grandfather.)

 

 To the left we have Marilyn, (Hi! Nice to meet you. I write this blog.) and Mackenzie's Mom, Susanne

 

 This guitar was signed by Tim McGraw, Brad Paisley, Allan Jackson, The Band Perry, Easton Corbin and a couple others to be raffled off. If you do not listen to 101.9 the Wolf...Please start! They have the biggest hearts! Please tune in to 101.9 the Wolf in support of Mackenzie!
  

 

 

These are just a few shots that I caught on my cell phone, from Mackenzie's spaghetti feed in August. Thank you so much to 101.9 The Wolf and their dj's for coming out and making our night a smashing success. Much love everyone!!!

Thanks!!!
Team Mackenzie!!!!!

Adults and Ollier's

It was brought to my attention the other day that I had set up the blog but had only addressed children with Ollier's and not adults. I have since corrected this issue... it was my understanding that Ollier's Disease is diagnosed in childhood, but since there is not a lot of information on this, I didn't find anything talking about adults being diagnosed either in adulthood, or in childhood and then battling to adulthood and through life while carrying this around. I stand corrected. =)

What I would like more than anything, is for people to share their stories or their childrens stories about being diagnosed and treated for Ollier's Disease. My goal is to share those stories to this blog, so that way, when someone googles "Ollier's Disease" they will be linked to this blog and able to see that they are not alone. This blog is public. Its been seen in 8 different countries and we are almost at 300 views... the word is spreading. People are looking. And that is exactly what I want, so please, share your story. You could help someone feel better about facing Ollier's. Your story can change someones outlook and give them strength for their journey, I don't know about anyone else, but that idea definitely appeals to me.

I spoke with Mackenzies mom this week. Mackenzie has multiple tumors on her fingers now that are growing large and are very painful. So painful that shes having trouble coloring. This is a sad turn of events for us and we are praying that she is able to get some relief in the coming months... Soon Mackenzie will be undergoing the first of a series of surgeries to remove tumors and lengthen growth plates to try and keep her body growing as well as possible. This is the beginning of a serious battle for Miss Mackenzie and her family. If you're the praying kind, offer up a prayer for strength for Kenzie's mom and recovery for Kenz. If not, positive vibes are always welcome too.

As always,
Thank You For Your Support!!!!
Team Mackenzie!!!!!